History
The CureMAPK8IP3 Foundation was incorporated in Delaware in June, 2023. We are currently awaiting 501(c)3 status from the IRS. Our first MAPK8IP3 Conference is planned for the spring of 2024.
Mission
The CureMAPK8IP3 Foundation is a non-profit global community dedicated to improving the lives of patients and families affected by a MAPK8IP3 gene mutation. The Foundation works to raise community awareness of MAPK8IP3-Related Neurodevelopmental Disorder, facilitate research related to MAPK8IP3-Related Neurodevelopmental Disorder, collect and disseminate information and resources related to MAPK8IP3-Related Neurodevelopmental Disorder, and connect and support those individuals and families affected by MAPK8IP3-Related Neurodevelopmental Disorder.
Vision
The CureMAPK8IP3 Foundation is a collaborative network of families, patients, researchers, clinicians, industry leaders and innovators–from around the world working to accelerate treatment (and a cure) for persons with MAPK8IP3-Related Neurodevelopmental Disorder. The CureMAPK8IP3 Foundation is developed to meet the needs of individuals and their families affected by this variant through community, robust biological and genetic research programs, financial assistance, education and more. The CureMAPK8IP3 Foundation is working to improve our understanding of MAPK8IP3 gene function, clinical care, and targeted strategies to develop treatments and cures.
Our Board
Read about our Board of Directors- Page coming soon!