Supporting Families on their Journey with
MAPK8IP3-Related Disorders
Join Our 8003 Miles for MAPK8IP3 Virtual Walk!
Together we're going the distance — 8003 miles — to raise awareness and support for families affected by MAPK8IP3-related disorders.
We kick off on Giving Tuesday, December 1st and finish on Rare Disease Day, February 28th, 2027. Every mile counts, wherever you are and no matter what you do (walk, bike, run, swim, roll!).Â
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Every Mile. For Every Family. For Moving us Forward.
Our Mission
The CureMAPK8IP3 Foundation is a non-profit global community dedicated to improving the lives of patients and families affected by a MAPK8IP3 gene mutation. The Foundation works to raise community awareness of MAPK8IP3-Related Neurodevelopmental Disorder, facilitate research related to MAPK8IP3-Related Neurodevelopmental Disorder, collect and disseminate information and resources related to MAPK8IP3-Related Neurodevelopmental Disorder, and connect and support those individuals and families affected by MAPK8IP3-Related Neurodevelopmental Disorder.
New Family Support
Receiving a diagnosis can be overwhelming. We are here to guide you through the first steps and connect you with the resources your family needs right now.
Understanding MAPK8IP3
MAPK8IP3-Related Neurodevelopmental Disorder is a rare genetic disease caused by variants in the MAPK8IP3 gene, affecting brain development and axonal transport within neurons. Our foundation provides essential resources and a supportive community for families navigating this complex journey.
Community · Research · Hope
Join us in Boston, MA for an empowering weekend of research updates, clinical insights, and community building. This is our biennial gathering for families affected by MAPK8IP3-Related Neurodevelopmental Disorders.