New Family Support
Receiving a diagnosis can be overwhelming. We are here to guide you through the first steps and connect you with the resources your family needs right now.
Understanding MAPK8IP3
MAPK8IP3-Related Neurodevelopmental Disorder is a rare genetic disease caused by variants in the MAPK8IP3 gene, affecting brain development and axonal transport within neurons. Our foundation provides essential resources and a supportive community for families navigating this complex journey.
Community · Research · Hope
Join us in Boston, MA for an empowering weekend of research updates, clinical insights, and community building. This is our biennial gathering for families affected by MAPK8IP3-Related Neurodevelopmental Disorders.
When
November 6-7, 2026
Where
Boston, MA, USA
Format
Hybrid (In-Person & Virtual)
2026 Family Conference
8,003 Miles for MAPK8IP3:
Coming Soon
8,003 Miles for MAPK8IP3
Kickoff: Giving Tuesday (December 1, 2026)
Finish Line (February 28, 2027)
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Organized by The CureMAPK8IP3 Foundation, this virtual walk brings families and supporters together to raise awareness, support research, and move toward better futures for people with MAPK8IP3-related neurodevelopmental disorder.
Coming soon
Stay tuned for registration details and how to join our collective journey by logging your miles.
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Every Mile. For Every Family. For Moving us Forward.
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The Foundation
Mission
Working toraise awareness, facilitate research, provide resources, and connect families affected by MAPK8IP3-Related Disorders.
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Our Boards
Bringing experts together to inform our next steps. Dedicated parents who care deeply about our mission.Â
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Support us
Your support in helping us learn more about this disorder and drive research forward is invaluable to our mission and our families.
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