Hi MAPK8IP3 families and friends of our community,
I wanted to share of our end of year 2024 report for what we accomplished in 2024:
2024 End of Year Report
- Served approximately 80 families worldwide
- $6000 was directly donated to Boston Children’s Hospital by donors through our Rare Disease Day Natural History Study campaign with Dr. Chung in February 2024
- Social circle support groups over Zoom broken up by variant type (17 served)
- First in-person conference in Boston, MA during March 2024 with 14 families participating and researchers from Boston Children’s Hospital, University of Alabama-Birmingham, and University of Illinois Chicago as well as the Wolverine Foundation
- 501(c)3 status granted by the IRS
- Two educational sessions for families: ABLE accounts and AAC communication
- 2024 Funding presentation to families
- Giving Platform established
- Grant coaching session completed for board
- $1055 raised for our foundation through our end-of-year small genes, big dreams giving campaign
Thank you for all the ways you have supported our organization in 2024. We are so grateful!
Anne Jones,
Board President
The CureMAPK8IP3 Foundation
connect@curemapk8ip3.org
