Hi MAPK8IP3 families and friends of our community,
I wanted to share of our end-of-year 2025 report for what we accomplished in 2025:
2025 End of Year Report
- Served approximately 90-100 families worldwide
- We raised $2230 (of this, $120 raised through Etsy T-shirt sales) with $1430 earmarked specifically for the Natural History Study
- Six social circle support groups scheduled over Zoom
- First virtual conference over two days in November 2025 with research presentations and educational sessions on reading interventions and self-care for caregivers
- School advocacy educational session
- Connected with RTW Foundation to provide ongoing rare disease advising
- Began sending out newsletters via email and our private Facebook page to families to disseminate information and resources
- First paper on Natural History Study published
- Joined Global Genes
- Began assembling Scientific Advisory Board
Thank you for all the ways you have been involved in and supported our organization in 2025! We are so grateful!
Anne Jones,
Board President
The CureMAPK8IP3 Foundation
connect@curemapk8ip3.org